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About Me

Hi! I am Lily. I am 10 now and have Down syndrome. To be more exact I have Robertsonian translocation between chromosomes 21 and 21. I have done a lot in my ten years here on earth. I had a small part in a movie called “The Jerk Theory” and I have been interviewed by a television show in New Zealand called Attitude TV. The story of my adoption is in a book called Windows into Heaven – Stories Celebrating Down Syndrome.
My mom and dad say I’m their Ladder to Heaven. I’m just here having a good time, meeting lots of really cool people.  Check out my website, if you have a comment, idea, or just want to say hi, send me an email. Be sure and check out who we are helping today!

Interview questions asked of Lily October 2008

Do you have a disability? No
Do you have Down syndrome? Yep I do
What is Down syndrome? Me
Is Down syndrome bad to have? No

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The Jerk Theory is a story about Adam(Josh Henderson), an aspiring musician who has women all figured out. After his girlfriend kicks him to the curb for the school jerk, Adam decides that, since girls don’t want the nice guy, he’ll be the jerk. It works like a charm.

Molly(Jenna Dewan), on the other hand, is done dating jerks. When she dumps the very tool that stole Adam’s girl the year before, Adam sets out to score with the girl who dumped his sworn enemy but Molly wants nothing to do with Adam or his theory.

Adam will have to reincarnate the nice guy if he wants any shot with Molly, but the transition may only lead to heartache once again.

Lily plays the role of “Kate” Adam’s younger sister with DS. This is where you will see Adam’s true side.

Read Lily’s Blog Posts about being on the set of The Jerk Theory.

Check out Lily’s audition videos!


Lily’s IMDB page!

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