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Lilyisms – What do you think Jesus drinks!?!

March 8, 2010

Can I just say I love my daughter! She is singing in her room. She likes to combine lots of different songs and put them into one. Right now she is singing church songs and the chorus… “Jesus drinks Diet Coke!” No wonder I like him so much!

I’m sharing pictures of her special box that we got her for Christmas. I love it! She feels it with her treasurers.


Posted by Lily @ 5:39 pm
Filed Under: Lilyisms
1 Comment... Leave a Comment  

MY DATE WITH DADDY!

March 6, 2010

I went on a date with my daddy! The date was at my school. We danced! There was music. We ate hot dogs. It was fun. I like doing things with my dad. We hang out together. I help him at work. We go on rides and see my grandma. I love my daddy! He’s my favorite daddy. That’s it.


Posted by Lily @ 12:11 pm
Filed Under: Dad, Lily
3 Comments... Leave a Comment  

KRISTEN!

February 14, 2010

We met Kristen today! She’s cute! She doesn’t have hair because she has cancer. We traded Valentines! She was watching Wizards of Waverly Place on T.V.! I love that show. She had Hannah Montana toothpaste just like me! She gave me her special bracelets. We made her a special picture. Do you see the hearts in our fingers? She had on a heart shirt. I liked it. I want Kristen to get better to play with me. Please help Kristen feel better by praying for her. That’s it.


Posted by Lily @ 3:02 pm
Filed Under: Down syndrome, Friends, Kristen, Valentine's Day
7 Comments... Leave a Comment  

Lilyisms – She must have been bored or in a creative mood!

February 12, 2010

I went to take a picture yesterday and the battery was dead. I charged it, still couldn’t take pictures. Then I realized the file was full to the max…

Thank you Lily, I realize I need to clean out the frig.


Posted by Lily @ 6:30 pm
Filed Under: Lilyisms
2 Comments... Leave a Comment  

WHERE HAVE I BEEN LATELY!?!

February 4, 2010

NEW TEE SHIRT DESIGN!

NEW TODDLER TEE SHIRT!

NEW STUFFED ANIMAL – LADDER TO HEAVEN DOG!

WORDS SAY LADDER TO HEAVEN!

It’s been a while since I have blogged. Christmas got in the way. My mommy got a job at Stella’s! I’ve just been busy! So, what have I been doing…
I cleaned my room.
I watch my movie in my room. I got a portable DVD player for Christmas!
I go to school. I went on a field trip yesterday to the symphony. We walked and we walked and we walked.
I’m tired today.
Tomorrow I have a party at school! We get to take a pillow, blanket and stuffed animal. We had to do all our homework to get the party.
My mom’s job is at Stella’s house. She helps Stella make dinner. She hangs out with them. She takes Stella to the doctors. I like Stella. (note from mom – I am now a support person for individuals with disabilities. I love it. Lily loves the ladies I work with and they love her.)
We got new shirts made! Henry designed my new shirts! I like my new shirts!
We got new Heaven Dogs to sell too! They have tee-shirts too!
That’s it!


Posted by Lily @ 4:27 pm
Filed Under: Henry, Ladder to Heaven Bear, Lily, ME, Note from mom, Stuff a Pal, blogging, mom, tee shirts
2 Comments... Leave a Comment  

COOL THINGS COME IN THE MAIL!

December 18, 2009

I got lots of cool things in the mail lately!

blanket and village 002

blanket and village 007

blanket and village 008

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I got my blanket from Chandos from the T21 Traveling Afghan Project. My blanket is awesome. Thank you Chandos!

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I got my new Ladder to Heaven Dogs that we are going to sell in my store! It has the design, my brother Henry made, on the tee-shirt! Thanks Henry and Linda at Stuff A Pal

channing

Jenna

Today I got pictures from Jenna Dewan-Tatum my co-star in The Jerk Theory and her husband Channing Tatum! Jenna’s cute, she’s nice to me. Channing is handsome! He’s a good man. Thanks Jenna and Channing!
I like getting things in the mail! That’s it!


Posted by Lily @ 1:06 pm
Filed Under: Channing Tatum, Jenna Dewan-Tatum, Ladder to Heaven Bear, T21 Traveling Afghan Project
7 Comments... Leave a Comment  

Lilyisms – IQ TESTING MAY SHOW DISABILITY BUT SHE’S ONE SMART COOKIE!

December 16, 2009

When Lily comes home from school she is suppose to show me her homework folder. Lately she’s been telling me she has no homework (which I believed – LOL!) But yesterday, after I had a meeting at school to go over her IQ test results, when I asked about homework she said “I did it on the bus!” Oh no… I said let me check it. Without hesitation she handed over her homework. She actually did pretty good, but take a good look at the top right hand side of her paper.

lily homework 001

lily homework 002
She’s smart enough to forge her parent’s names!!!!


Posted by Lily @ 6:00 pm
Filed Under: Lilyisms
3 Comments... Leave a Comment  

DEAR SANTA

December 5, 2009

Lily and santa

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udsf christmas 2009 002

Dear Santa,
Thank you for coming to our Down syndrome party. I had fun. I’m glad Ben and Bradley got to come. It was fun to see my friends. My boyfriend Skyler was there, different Ben was there, Ivy was there and Natalie. I liked the dance a lot! I liked the boys that danced with me. The food was good. I want to remind you what I want for Christmas. I want to get a doll. That’s it.
Love, Lily

Note from mom – On Wednesday we went to a wonderful Christmas Party! A young man had contacted me to see if there was anything he could do for the UDSF to earn his Eagle Award in Scoutung. Well… Let’s just say he earned his Eagle in grand style! He along with his family, friends, fellow scouts threw a big bash! With Santa, games, crafts, dancing, and brownies with peppermint ice cream and hot fudge sauce! I love these kids. I have loved being the president of the UDSF. I just feel so honored to be part of all this. I have a picture of Bradley and want so badly to post it, but I won’t. I feel strongly he needs to be with us.
P.S. I guess the card thing in the last post is no longer working. Rosie was kind enough to let me know and sent a link where you can send cards that will really reach soldiers! Thanks Rosie!


Posted by Lily @ 8:56 am
Filed Under: Advocacy, Christmas, Down syndrome, Friends, Note from mom
7 Comments... Leave a Comment  

ONE EXTRA CHRISTMAS CARD

November 30, 2009

When doing your Christmas cards this year, take one card and send it to this
address.

If we pass this on and everyone sends one card, think of how many cards
these wonderful special people who have sacrificed so much would get.

When you are making out your Christmas card list this year, please include
the following:

A Recovering American Soldier
c/o Walter Reed Army Medical Center
6900 Georgia Avenue, NW
Washington, D.C. 20307-5001


Posted by Lily @ 9:32 am
Filed Under: Christmas
3 Comments... Leave a Comment  

PROGRAM SO FUN!

November 24, 2009

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Lily xmas program 020

Tonight was my Christmas program for my Special Needs Primary and Mutual. I was an angel. I sing. I didn’t giggle. I just sit there and sing. I lead the music! (Surprised Mom and Dad!) I was good at it. I played the chimes. I’m pretty good at it. My grandpa and grandma come. We ate cookies after. Cookies good! All my friends come and watch us. People clapped for us. That’s it.

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Posted by Lily @ 10:55 pm
Filed Under: Christmas, Disabilities, Down syndrome, Faith, Friends, Grandpa and Grandma, Lily, Public Awareness, Pure Joy, Special Needs Primary
5 Comments... Leave a Comment  

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