I came across a post on Facebook the other day that really got to me. A mom was stating how she and her child are disability snobs. The mom stated that her child prefers to stay away from crowds, which I completely understand. But, then the mom said the child didn’t like to be in…
This summer is slipping away much too quickly. I enjoy my time with Lily during the summer and I am already getting sad thinking that she will be going back to school soon. There has been sleep studies. Special Olympics Gold Medals because she wore lucky warmups! Fun times driving in the car and listening…
Thursday Lily and I had the pleasure of attending a wonderful musical program put on the the South Davis Special Needs Mutual. Over 150 individuals with disabilities sang and danced as they shared an important message with the audience. Anyone can live a fairytale life. You just have to open your eyes, see your potential,…
When I started Lily’s blog back in 2008 it was so family and friends could follow her journey while making the movie The Jerk Theory (no it never came out in the U.S. and I don’t think it will). It has progressed since then to her fun Lilyisms antics and her journey into a teenager….
Yes – I had dreams about Lily long before she was born. Yes - we knew she would have Down syndrome before we started the process to adopt her. Yes – we are still is touch with her birth mommy. Yes – Lily knows she was adopted. Yes – Lily is named after me and her…
My son Henry has bronchitis, but you and I don’t call him Bronchitis Boy. Why is it okay to call my daughter down’s, downie, Down syndrome girl? It’s not, but many of you may not know that so I’m going to tell you now IT’S NOT OKAY TO CALL MY DAUGHTER THE DOWN SYNDROME GIRL! You could…
Today we our guest writers of Organic Enchilada , for her Walk A Mile series. This is a fun, entertaining, amusing blog that I laugh out loud at. Join us at Organic Enchilada today. Get a head start on October Down Syndrome Awareness Month! Our computer is sick so there will be no pictures of…
With school starting up again you see all the “first day back” blogs and all the comments on FB about how moms are crying, happy, sad, or really really angry. Why angry? INCLUSION! All us moms out there who have children with developmental and/or mental disabilities deal with inclusion on a daily basis. Will our child…
A few years ago Lily had an interview where she was asked about Ds – Interview questions asked of Lily October 2008 Do you have a disability? No Do you have Down syndrome? Yep I do What is Down syndrome? Me Is Down syndrome bad to have? No At her birthday dinner this year she…
