I came across a post on Facebook the other day that really got to me. A mom was stating how she and her child are disability snobs. The mom stated that her child prefers to stay away from crowds, which I completely understand. But, then the mom said the child didn’t like to be in…
When I started Lily’s blog back in 2008 it was so family and friends could follow her journey while making the movie The Jerk Theory (no it never came out in the U.S. and I don’t think it will). It has progressed since then to her fun Lilyisms antics and her journey into a teenager….
Tonight is Chick-Fil-A Down Syndrome Spirit Night! Thanks to the hard work of Emily we get to eat chicken tonight! Join us at South Jordan Chick-Fil-A 11494 S. District Drive South Jordan, UT Between 5p.m. & 7p.m. 10% of all revenue will go to the Utah Down Syndrome Foundation!
This weekend I went camping with Dad, Henry, Brynn and Cooper (Brynn’s dog.) I catch a fish. I catch a big one and a little one. I ate sandwich, peanut butter and jelly, chips, and gold fish, and I can’t remember what I had right now. Oh chocolate cookies! I had hamburgers my dad made and…
Yes – I had dreams about Lily long before she was born. Yes - we knew she would have Down syndrome before we started the process to adopt her. Yes – we are still is touch with her birth mommy. Yes – Lily knows she was adopted. Yes – Lily is named after me and her…
My son Henry has bronchitis, but you and I don’t call him Bronchitis Boy. Why is it okay to call my daughter down’s, downie, Down syndrome girl? It’s not, but many of you may not know that so I’m going to tell you now IT’S NOT OKAY TO CALL MY DAUGHTER THE DOWN SYNDROME GIRL! You could…
I don’t have to hear this question out loud; I can see it in their faces. She has Down syndrome. Today is the first day of 31 for 21 because October is Down Syndrome Awareness Month. Grab This Button What is Down syndrome? Down syndrome occurs when an individual has three, rather than two, copies…
Tonight was my Christmas program for my Special Needs Primary and Mutual. I was an angel. I sing. I didn’t giggle. I just sit there and sing. I lead the music! (Surprised Mom and Dad!) I was good at it. I played the chimes. I’m pretty good at it. My grandpa and grandma come. We…
This month we are featuring Sarah’s Covenant Homes. As always for every Lily’s Life is Great! Tee-Shirt that we sale 21% of the profits will go Sarah’s Covenant Homes. Truthfully we have not sold a shirt yet, but we have brought more awareness to the organizations we have featured and that means a lot too….
